Educational Resource: New Horizons in the Management of ADA-SCID

New Horizons in the Management of ADA-SCID is a free educational resource for healthcare professionals managing patients with this rare disease. The resource features:

  • Webcasts on the diagnosis and management (including gene therapy) of ADA-SCID
  • Video interviews with clinicians, nurses, as well as a parent about her child’s journey from diagnosis to treatment
  • Case studies on clinical presentation and newborn screening
  • Specialist directory: map with locations of specialists around the world
  • Summaries of the latest published articles about the disease
Launch Resource

Resource Editorial Board
·         Dr Robbert Bredius, Leiden University Medical Centre, The Netherlands.
·         Dr Fabio Candotti, Lausanne University Hospital, Lausanne, Switzerland
·         Dr Andrew Gennery, Newcastle University and Great North Children’s Hospital, Newcastle upon Tyne, UK